Category Archives: Myeloma

Mid Week Miscellany and Happy Chinese New Year/ the Year of the Snake!!!!

Posted in California, cancer, cooking, home stuff, Myeloma, peritoneal mesothelomia, swimming by

Well, whatever got me left pretty quickly. I think it may have been a build-up of acid reflux, which is why I take omeprazole daily. But I’m not a doctor, so I don’t know. This happened once before but then I had taken Dex and Dr. L thought the two were related. This time, no dex, but I did eat the turkey chili which probably was acidic. Who knows? Ill keep take in my journal. Anyway, I felt better by yesterday afternoon. And I slept well last night.

I didn’t walk this morning, though, so I’ll go down to the pool and swim. Tomorrow I’ll walk and get back on schedule.

Great news. Stanford called, and we have an appt for Feb 12. She didn’t have the exact time yet, so we need to hear what that is. So, at this point, we’ll go down on the 11th, he does need labs from their lab, so we’ll do that first. The lab is in the Medical Center, so we know where that is. I’m glad we have a focus finally!!

The 12th is also my appt with Dr.Laptalo, so I’ll have to cancel that and reschedule. As long as my numbers are stable( with some fluctuations), I’m fine with that.

I’m seriously trying not to be totally flipped out about what Trump is doing. Hesgreth confirmed?? RFK is a lunatic, the press conference person with a cross around her neck big enough to ward off vampires?? WTF is happening in this country??? I feel so hopeless right now. I just can’t imagine 4 more years of this if we even make it before we are an autocracy. So hard to imagine where we are in this country right now.

Well, I need to go get my suit on and control at least some fraction of my life. Swimming does help, as does walking. Keep on keeping on, I guess.

Thankful Thursday

Posted in budgets, California, cancer, cash envelopes, Gratitude, Myeloma by

It’s a chilly morning here in N. Ca. I hope the fires are under control in SoCal. what a thing to go through. We live in a high fire danger area and so many insurance companies have dropped policies. What is going to happen with the cost of policies now? I’m sure everyone’s is going up.

I’m thankful for a warm house and we have enough wood to get through. I think next year ( this coming winter) we’ll need to buy wood. I don’t see B getting the wood splitter going and going to get wood. We could take some more small oaks down in the woods, so maybe that’ll happen.

I’m thankful we’ve all been healthy( of course that is somewhat relative with cancer) but still no colds or flu here. Although I do have some sinus stuff going on but hopefully that’s just seasonal stuff.

I’m thankful, as always, that we can pay our bills with our SS. We don’t have ‘extra’ but we have enough! Of course, I’d love to re do the kitchen and fix our foundation but it is what it is.

Speaking of money, I’m very grateful to LLS that gives me a grant for Myeloma and pays my insurance. Without that, we would be struggling. Insurance adds up.

I’m thankful for this time in my life. It is hard getting older. It is a gift though to reach 72. Lots of people don’t. So I try to do the best I can and I’m thankful for that.

The VW should be done today or tomorrow. The mechanic said it needed lots of things fixed, hmm, yes, we know that) but we said just do the starter, battery, and an oil change. It’ll come in @ $ 1200 I think. I have $300 in my auto repair envelope and then I’ll put the rest on my card. Not ideal but needs must.

I plan on going to the gym this morning. Then we have the video visit with Stanford. Plus I’m soaking pinto beans to can so I’ll try and get the canner going after I get home.

Thankful Thursday

Posted in California, cancer, Gratitude, Myeloma by

It’s Thanksgiving Day so lots to be thankful for:

For B doing well after Chemo. It’s early days yet but still, it’s nice to feel things normal. It’s around day 10 that the drops happen. The chemo was reduced some so maybe he’ll not have as big of a drop. Still, I’m thankful for the chemo working even though it’s a very difficult drug. (Cisplatin).

I’m thankful my 2 children are healthy and happy. They both help us so much. S is around to do extra stuff we need done and I’m beyond thankful for that.

I’m thankful my cancer is staying steady with my light chains in the normal range. My ratio is slightly out of range but not by much.

I’m thankful I can walk in the mornings and enjoy the early morning sunrises.

I’m thankful that we have SS and it pays our bills. Since we still have a mortgage that’s a big deal. We probably couldn’t afford to live somewhere else unless we rented and then that would just be using money from selling this. We don’t want to do that at all so here we stay. My son is putting in some railings by our deck and the sunroom for safety.

I hope this day finds you as well as can be and what are you thankful for?

Simple Sunday

Posted in California, cancer, cooking, Flylady, instant pot recipes, Myeloma, Political things, velcade by

It’s not so hot but there’s more humidity because of some cloud cover. Still, it’s not going to be over a 100 so that’s something. I think the rest of the week is in the 90’s.

I went to the gym and did some weights and then headed over to Target to get a few things. It wasn’t very busy which is odd.

This coming week is not too filled with appts. I have Velcade on Thursday and that’s it. I do plan to swim at least one time maybe two. I have a hold to pick up at the library so I’ll do that too.

I made some Instant Pot polenta yesterday and it was yummy. I love polenta. The recipe called for 4 1/2 c water but it was too much so 4 c. is what I’ll do next time. It was one of the reasons I wanted the IP again was to make polenta. So easy.

Not sure what the rest of the day holds. Maybe a quick tidy. I used the steam mop yesterday after vacuuming so that’s done. Flylady zone is the bathroom so I will mop the floor with my microfiber mop, not the steam mop.

Other than that, not much! It’s somewhat depressing around here with the impending diagnosis out there. I guess we’ll just carry on. After all, what choice do you have really?

On the political front, I’m hoping Republicans don’t start in with this assassination attempt being somehow from Democrats. I believe the shooter was registered as Republican. Also, trump was fist pumping and saying fight, fight, as he was escorted away. So where’s that going? Still, violence is not the answer but banning A-15 rifles just might be.

Frugal Friday

Posted in California, cancer, cooking, frugalism, instant pot recipes, Myeloma by

Well, to continue the non- frugalness, our PGE bill estimate same in and it’s just under $400. OUCH!! The exact number isn’t there yet but I suspect at least $350. So with coolers running all day for the last 3 weeks, it’s understandable. Yesterday topped out at 109. So, still hot. And today, I believe is another scorcher and then temperatures start to drop. Next week the temperatures look to be in the 90’s and then an increase again next Saturday.

In frugalness though, I gassed up at Costco which is a significant savings. I only drove to the pool twice so that too saved money/gas.

I shopped at Costco and spent $125 or so but that included 2 bottles of wine. Nothing expensive, I like the Kirkland brand sauvignon and pinot grigio. The new Costco is so convenient and I was in and out in 20 minutes.

No other grocery shopping, if I recall. Today I need to pick up half and half and some corn tortillas and wine for the weekend.

As part of Amazon’s prePrime days, I bought an Instant Pot for 42% off. My instant pot died about 2 years ago and I’ve debated getting one but decided that if a deal came up, I’d get one. I think the end cost was $72. I plan on using it today as it’ll be hot and I can cook something without heating up the kitchen.

Yesterday, B had his ultrasound needle biopsy. We should get the official diagnosis next week, but certainly, cancer. The question is what treatment is there.? I’m not sure surgery is an option as there are multiple soft masses so chemo? radiation? I guess we’ll know soon enough. ( sad sigh)

Today, I’m meeting my library friends for coffee. One of them is the one whose husband died this past year of Myeloma. She’s done really well and has her two adult daughters as support. Being we’re meeting at the local cafe at 10, I won’t plan on the gym.

We had tacos and burritos from the Taco Tree after we came up from Sacramento so that was $22. But I didn’t need to cook dinner.

I got the notice that I need to renew my license and take the test etc. I’m not worried about that, just the eye exam as I don’t see much out of my right eye. I guess I’ll do my best and if necessary I’ll get my eye doctor to fill in the form that I can see 20-20 out of my left eye. Still being over 70 is challenging with these new things. But I guess, safety is key here.

I’m looking forward next week to being able to sit outside for dinner and afternoons. It feels like we’ve been stuck inside for weeks. Oh, we have:)

Saturday, hot and hot

Posted in Blood test, books, California, Myeloma, reading by

That’s it. It will be hot. I have all the windows closed and the thermal blackout curtains closed too. I have one cooler running on 78 so some air is circulating.

As I mentioned, I was planning on taking the 8 mg of Dex and I did that evening. I slept ok so I don’t know if my BP went up but I think not. I took it when I got up and it was in perfect range. I checked all day and it was fine. So I decided to go ahead and do 4mg Friday. And today I did 4mg so that takes me up to 16mg. My BP has been in perfect range so maybe that’s the ticket. I’m still unsure how the efficacy of doing it over a few days will be and I will ask Dr. L when I see him next. I get labs Monday so it may be too soon to tell with these labs. I guess we’ll just wait and see.

I’ve been busy this morning and even with the 4 mg of dex, I feel pretty good. So I put back a few baskets on the bathroom shelves and hung my Japanese block print back up. I love Japanese block prints but really only like the ones with water or Mt Fuji. I’ve checked eBay and they are out there but pricey.

I hardboiled some eggs so B can have extra protein. He’s lost way too much weight and so we’re trying to figure out if it’s serious or just that he’s burning more calories than he’s taking in. So far all his labs are in the good range so no surprises. He has a CT scan scheduled to see if there’s some obstruction and he’s called his UCD transplant team to check in. Hopefully, it’s just calories in calories out.

Then I’m making chicken broth in the crock pot to either can or freeze. I still want to replace my instant pot but it’ll have to wait till we have some spare $.

I made a pesto noodle salad for dinner and added some olives and mozzarella. It’s so hot we’ll want to have something cold I think. We even ate at the table last night because it was too hot outside. We had a shrimp scampi, a big tomato, fresh mozzarella, and bibb lettuce. then I pan-toasted some homemade sourdough with garlic and olive oil. Very tasty.

I think my daughter will drive me to the pet bookstore to check if any Longmires came in. I doubt it though, I scoured Goodwill in Auburn and not one. I guess if I really want them I’ll have to buy them used on Ebay but there not cheap! I guess people keep them as they are very re-readable.

Guster in a small dog harness!!!

Thankful Thursday

Posted in Blood test, California, camping, Gratitude, Lake tahoe, Myeloma, travel by

So thankful we can enjoy our RV and be at Lake Tahoe. It’s like winning the lottery to get a spot. I checked for the whole rest of the season and there’s nada, zip nothing available. I am really surprised at the amount of people though, probably it’s because it’s so warm and the lake is inviting. Probably, though it’s just there are too many people. I just read, while here, that Sand Point will only be available by reservation. I’m glad really as it will curtail some people. The problem is people parking on the road making it very dangerous to drive.

I’m thankful for the beautiful weather here. We’ve had a campfire every night and haven’t even sat in the trailer in the evening.

I’m thankful that my doctor always answers when I e-message as I did after my labs came in. He said it was a small increase and essentially not to worry. I value that he respects my input. Of course, I’ll still worry and see what the next round brings.

I’m very grateful my daughter is off work for the summer and can be home to take care of things. Especially when it’s this hot at home the gardens need water every day. And the kitties need someone there too.

I’m grateful we have the lifetime senior pass and it allows us to camp here( US Forest Service) for 1/2 price. The California State beaches and parks don’t use that pass so it’s more to camp there.

Lake Tahoe

Posted in Blood test, books, California, camping, cancer, Lake tahoe, Myeloma by

This is around 8 am. Calm lake.

The difference in 10 days is quite noticeable. Lots more people at the beach and more kids in the campground. The camp hosts are very friendly and keep a tight ship. Very clean bathrooms and they keep the trash off the beach.

It’s nice here with a high of 77 which is very pleasant. We’ve had a fire each night and also BBQ stuff. Tonight I have leftovers from last night so I’ll see what I put together.

In other Myeloma news, my kappa did go up 7 pts. So I’m a little upset but I knew something probably was going to be different without the dex. Next week I have Velcade and then labs the following week. It’s a short time between labs so I guess I’m leaning towards not taking it and seeing the results. Dr. L’s take was that it was a very small increase. But it still was a jump in my book.

I’m enjoying the new Longmire, First Frost. Excellent!!

Sunset.

Simple Sunday

Posted in California, camping, home improvement, home stuff, Myeloma, travel, Walking by

Finally a walk in the park at 5:30. Very nice and cool. All the Canada Geese babies have grown up except one family and they were the last ones born. They grow up so quick. We did 1.5 miles so I felt good about that.

Today we’re going to Costco so that will add more steps to the day. We don’t need a whole lot but it adds up, Toilet paper is 20, coffee 15, etc. Adds up pretty quickly. We also need to gas up the Chevy and get cash from the teller.

Once we’re back home my son will help B put up the shower curtain holder on the ceiling. The one contractor we had come check it out said his bathroom was just as small and he put in the hotel-type rod on the ceiling. So it’s a band that then has the hooks attached. Think of the hospital-type curtains in the ER or in a room. I ordered the extra long curtain so it should go all the way to the shower pan.

Here’s my well-loved claw foot tub. It took 3 people to move it out. I’m still very sad to not have it in there anymore but I know it’s for the best. I just wish there had been a way to keep the bathroom the way it was and add a shower somewhere else. But alas, that was not to be. Our future selves will thank us, I guess.

It’s been a rough week with norovirus and the handyman doing the bathroom, part one. As with most things, there were some snafus and it took a whole day longer. The grout has to now dry for a few days. We will still need him to install grab bars(they will need to be installed with a special drill because of the tile) and we’re not sure if he’ll do the flooring or B and my son will tackle it. The floor should be an easy project but we can’t do anything till we’re back. We still need to look at painting in there too. I think I have some of the original color left but not sure how much. I think I’d like to go to a very light grey as the grout between the white subway tiles is gray.

Since we’re gone all next week we can think about it. My daughter has some appts next week but otherwise, she’ll be here most of the time. She’s been working on cleaning up the chicken yard. Of course, Big Brownie is still using the coop but doesn’t go very far. Like I said, chickens are flock animals and I’m guessing she’ll go in a few months or less. We’re in for another few days of excessive heat next week, and that might do her in. Chickens don’t do well in the heat.

So yesterday, I drove to Roseville to pick up my holds so I’d have them for Tahoe. I’m excited about the new Longmire book. I didn’t go to the gym even though I wanted to. I still don’t feel quite up to working out. I stopped at Noah’s for bagels to bring with us and for here.

Things are still chaos in the living room that is now housing all the bathroom things. I really hate disorder so it’s been challenging. I guess I just need to get over it for now. I haven’t even done Flylady this week partly because I was sick and the contractor kid here( Well, he’s not a contractor per se, just a licensed handyman). It’s ok, it’ll all still be here to get done.

We’re back home from going to the new Costco in Rocklin. Wow, it’s really nice. It’ll be such an easy on, easy off from the freeway. I can see going more frequently and doing smaller shops.

Last night we had a BBQ and it was nice enough outside to sit outside. The temperature had dropped quite a bit to the mid-80s. I’m not sure what’s on the menu for tonight but probably I’ll BBQ some burgers and tofu.

Friday Things

Posted in Blood test, books, California, camping, cancer, home improvement, Myeloma, travel by

I’m feeling almost back to normal. Still slightly off but definitely better and I ate something yesterday. My daughter thinks I may have picked it up at In and Out Burger but she( a science nerd) says it can really be on any surface. So probably we’ll never know.

So today I was lucky to get a lab appt at 9am. A little later than I like with fasting but I’ll make it. I’m really anxious to know what my numbers are doing. Even if there has been an increase, I’ll go another month without Dex just to see. Sometimes, living with cancer is very tiring. With Myeloma, it just doesn’t go away or get ‘cured’, well I think if you have an allo it does. Oh well, I’ve made it this far.

The positive news is we’ve had a young man working on the bathroom. He’s only 30( my son’s age) but seems to know what he’s doing and is doing a great job so far. We need the shower at least functioning for my daughter next week because we’ll be in Tahoe. If it’s not, then I’m not sure what the alternative is. Hotel? outside shower? We’ve been using Rubi for bathroom stuff and B bought a new shower head which is divine. The one the trailer came with was pretty lame so this is a nice improvement.

We’re not going to have it all done before we leave as I don’t think the flooring will get done so B won’t be able to put in the Ikea vanity but that’s ok it’s mostly the shower. I’m not sure what we’ll do if there are leaks while we’re gone. I guess call and have him come over when my daughter is here? Well, it is progress and on such a small budget I think we’ve done ok. If we had lots of money I guess it would be a no brainer to have someone come in and redo the whole thing and build a second bathroom but alas that isn’t our destiny.

B has been going in and out to Home Depot and all over getting little bits of things and has been very busy. It helps he is organized that way.

The Oregon sparrows are migrating and are flocking in the bamboo. They are fun to watch. We turn the sprinklers on the bamboo and they love to drink the droplets. Often they hang upside down and are cute. We call them popcorn birds because they pop so quickly around.

The heat has been oppressive. I think today we’re about 10 degrees cooler so that should help some. We’re back to watering daily and the water bill just went over $100 and will definitely go higher. B filled the pool and that takes 10,000 gallons I think. This will be the last year of the pool. We’ve gotten our money’s worth that’s for sure but I can’t see investing in another pool next year. This is probably year 7 and think we paid around $1000 for it so I’m sure it is way more than that now. Plus there’s all the maintenance to take care of it and that cost. B is the only one that uses it daily. I go in once in a while to float and that’s about it.

I’ve been hanging out in the trailer all day and it’s been nice. I turned the AC on and it worked fine one day and the second day it blew the fuse so when it gets too hot I go out to the studio( my son’s room) and hang out there. He’s got a cooler and I’ve had that on. His studio is almost cleared out and sometime this summer we’ll paint in there. He’ll still come up to work in the barn and sleep over so I want to keep a bed out there. Also, he built a beautiful desk and bookcase out of birch plywood so that will stay too. His move has gone well and I’m happy for him. It’s very nice area very near the American River trail and lots of green space.

This week is a total wash with swimming or the gym but tomorrow I plan on going to the library as my holds are in. That’ll give me something to read in Tahoe.

On a sad note, our big black lady chicken, big mama, died yesterday. She was quite old for a chicken, maybe 10, and the heat was too much for her. So now there’s only big Brownie and I’m guessing she’ll be gone too soon. they were from the same batch and have lived an extraordinarily long lives. Maybe’s it’s the water? this is the end of an era of over 25 years of having chickens and with these gone, that’s it. The coup will come down and the area cleaned up. Rhonda over at Down to Earth talked about how she finally gave up chickens when her husband was ill and dying. She talked about how important it is to really check in where you are in life and what you’re capable of. We could keep having chickens as my daughter does live here but then it’s just one more thing to have to deal with, buying food, checking water, etc. So I’ll buy farm eggs when I can. There are tons of people around here who raise chickens.

On that note, she also talked about physical limitations as we age. She has a non malignant brain tumor which affects her balance so she doesn’t bend over. Because of that, she bought a steam mop so she could mop standing instead of with a bucket on the floor. Because of my macular pucker in my right eye, my balance is off sometimes so I just bought a very cheap steam mop for $59. I’ll try it out for a while if I really like it I’ll buy a more expensive model. This one just steams and there’s no on /off so I’ll give it few months