Midweek Musings

So 2 appt’s done and 2 more to go. I really hate having so many appts all in one week. But it should be over soon.

I got my labs done yesterday and then went to the gym and library. It felt good to do my weights. Today I’m going to the pool as it’s my only chance this week.

We did get the pizza at Round Table the other night. My daughter paid for it and she had a deal for one of them. B has something going on with his stomach?? so he didn’t eat any.

I did get pretty upset at him and yelled he needed to call the doctor. Well, he got an appt but it didn’t seem to be conclusive as to why he’s having some pain. Geez, let’s hope it’s not anything bad. I mean it’s only been a few weeks since his CT scan and the laparoscopy so I can’t figure out what it might be. Hopefully, he’ll just feel better because it’s a bummer.

It’s going to be raining for the next few days. It sounds like a good soup day. This weekend is the end of DLS so we’ll be springing forward. What a PITA. It takes me about a week to adjust. At least it’ll be light later. I prefer the light in the morning.

We watched the Conclave the other night and would recommend it. It’s not fast moving but it is so well done. With the pope ready to die, it seems a timely movie.

Then last night we watched the new Beverly Hills Cop movie. It was fun and it’s fun to see how everyone is so much older( like all of us).

Simple Sunday

A very cold morning. The park was all frosty. We did our usual loop which is about a 1.5. That’s what I aim for and then at the gym, I add on another .5 to 1 mile.

I’m heading into the gym this morning and then straight home. I don’t need to get anything. I have salad stuff B got at the store yesterday and leftover quiche too.

We leave early Tuesday morning and hopefully will between rush hours in the morning. Last time going down was fairly easy so I’m guessing Tuesday morning will be about the same.

I’ve finished the kitchen zone except for the floor. I asked my daughter to do that for me. Next, I’ll do the bathroom and bedroom zones. Just a quick dust and tidy.

I finished the taxes and submitted them. BTW, I checked out the IRS free e-file and it was not very user-friendly so I went back to Turbo Tax which is extremely user-friendly and just prompts you through.

Well, I’m glad this finally happening even if we don’t know the next step at least we know this one.

Menu Monday on Tuesday

I had to leave early yesterday(7:15) to get my labs, so I didn’t get to this. Then, I headed down to the pool and had a good swim. After that, I had to do a return at the Galleria Mall, so that took some time. All in all, after I got home, I was still dealing with changing my dental appt to a morning. I think I have everything squared away. Then B got an appt for the CT scan Dr. Lee wants in Sacramento, so he had to leave right after I got home. So I was pretty fried by the afternoon.

Last night, I just did a brinner of waffles, scrambled eggs, and veggie sausage. I had put on pinquitos in the crock pot but they weren’t quite done by dinner. We’ll have them tonight.

Tuesday: Pinquitos with cornbread

Wednesday: protein of some sort, probably chicken/tofu with baked potatoes from the freezer.

Thursday: I think I’ll make a homemade mac and cheese. I have a salad pack to use up.

Friday: Pizza of some sort. We haven’t had takeout in like forever so maybe that.

Saturday: some kind of soup

Sunday: Salmon from Alaskian Wildfish Co. with quinoa and?

My meals are not set, and I often change the day of things to fit what we feel like. But like Flylady, it’s good to have a basic outline of what to eat or do.

It’s still raining a LOT!! But tomorrow looks like a break. We need it. I might go to the gym /library, but I feel like it might be nice to stay home if the weather is nice.

I have a few things to tidy up, but the house is in good shape overall. The kitchen could use some tidying up. I went through the fridge and repackaged some stuff for the freezer(cheese) and threw away a few things. I might go do a little more of that.

The news is so depressing. I mean, RFK for health and human services when he’s against vaccines? These Republicans are spineless jerks. Just wait till there’s a full pandemic of bird flu, then what? Will he tell us all to inject bleach?? good grief, charlie brown.

that’s it for me today. Oh, I just finished 2 books. One is the classic Robin Hood that I have in Easton Press.

And then the new Evanovich, which is a real hoot!!

Mid Week

It’s been a lot of driving back and forth to infusion and there’s still more this week. Yesterday, I dropped B off at 10 and picked him up at 2:45. Tomorrow he needs to be there at 11am so I plan on staying down there and doing a few things. Depending on the timing, I will hit up the old Costco( as it’s closest) and I think maybe the library. Tomorrow is platelets so they go faster than blood transfusions. This week is all about appts so I’m not even thinking about the gym or the pool. Next week, I can pick up the rhythm again.

This is his last chemo as far as we know and I’m so over it all. Next week he has a video visit with the UCD doctor and that should give us a good idea of the next steps. Cancer has a way of shifting priorities. There’s not much you can do but go with the flow of it.

Today, I have my doctor appt in Sacramento. After that, I need to pick up a prescription and maybe go to the bank. I need the insurance printout but I’ll see how I feel after getting back to town.

last night we had the black bean soup and it came out good. I never follow a recipe with it just black beans in the crockpot and chili powder, cumin, garlic, and paprika. I also made turkey chili and there’s plenty left over to have tonight or freeze. Of course, B doesn’t eat meat so it’ll just be me tonight as our daughter works late at the library.

I’ve been working on organizing my cash envelope binders and have one just for savings challenges. The challenges are fun and usually, I only do ones with $1 or $5 bills. I’m saving up for an LV GM agenda preloved. I think this is what I want to use as my daily book. Once I get it, I can get some inserts and use them to write my lists and plans. Right now I’m using a really nice Leuchtturm 1917 my son gave me for my birthday. The paper quality is really nice. I use a CrossFountain pen and it doesn’t bleed through. The LV GM is the largest agenda and will make it easier to write in. Well, that’s a ways off yet but maybe by February/March.

From Bad to Worse!

Geez, can we get a break??

After Sunday, which took most of the day( my poor daughter sitting down at the clinic), they got home around 3:30. It was just one bag of platelets. So then even with that his nose bleeding got worse and worse. Some doctor called at 7:30 and said, you need more , your numbers just went to 25. Not good enough and hemoglobin down to 7.6. so either ER or if the clinic can take him. So why didn’t they figure that out to begin with and give him the 2 bags?? It’s ridiculous.

So he had very bad night which means I had a very bad night and ended up on the couch trying to sleep. He called right away in the morning and was able to get a 9:30 appt. It was unclear if they could do both blood and platelets. What a complete joke. Why are they not being proactive in this matter? I mean he’s down there on Sunday and has to turn around and GO BACK the next.

Anyway, being Veterans Day, traffic was light and he got there at 9:30. I left to come home. It was ALL day. My son went and got him at 4:30. Since it was so late he decided to spend the night and go to work from here.

So today is Tuesday, I have my labs and then I’m coming back home. I just can’t take going out again. AND especially since tomorrow, he has a physical appt back down at clinic with the doctor. I am going to be blunt about no chemo next week. He needs at least another week to recover. Hopefully, my labs are ok at least for now with all this stress. They went up last time so is that a trend or just another anomaly?

Besides that, it rained so hard yesterday coming out of Sacramento I almost pulled off the freeway to wait it out but figured I could get ahead of it in the foothills which I did. By the time I got to Newcastle, it was only a drizzle. Geez, what a stress factor.

Well, hopefully, today is a better day and there are no surprises. 🙂

Thankful Thursday( late) and Frugal Friday

Yesterday was busy so I didn’t get anything written. I had to be down at infusion by 8:30am so needed to leave early. I did get my walk in first thing and that was nice. I’m thankful, I am still walking even though B isn’t. With his numbers so down he doesn’t have the energy.:(

I’m thankful infusion went ok. They are great nurses for sure. I noticed though there weren’t curtains to pull around the chairs which is odd for infusion rooms. All the UCD infusion chairs have some kind of curtain for privacy.

After infusion, I went to the library to pick up my holds. I am thankful for the Martha Riley Library as it is a wonderful community space.

I didn’t really have any enthusiasm to go to the gym. After that, I went back down to Winco. I finally saw where the new Trader Joe’s is and funny, it’s right down from Winco. But you can’t see it right off as the gas station blocks the view. It looks to be a bigger one than the Rocklin one so I’ll check it out next time I swim.

I’m thankful this fall has been colorful with leaves turning all shades of yellows, golds and some reds. Other than that, this week is really a downer if I’m honest.

Frugal-wise, it was ok. I didn’t really do a whole lot. All of the first-of-the-month bills are paid. There’s a little left over to get through till the end of the month. There’s Thanksgiving and so I’ll need a few more groceries for that. I ordered the Diestal turkey roast to be delivered on Nov 21. They are not cheap, but local and I’ve had good luck cooking them.

I spent $125 at Winco, $25 was on wine, so $100 was on food. I also filled the car up at Costco gas so that is a big $$ savings.

Today is a Dex day so it’s home for me. Barclay’s platelets have tanked so he’s going in for more labs this morning and hopefully scheduled for infusion. this is day 10. so we’re starting to hit the real downtime (days 10-15). He’s much better this cycle but still, there’s the platelets dropping. His hemoglobin is doing ok, but I think this is the period too where that started dropping. Fingers crossed it doesn’t.

My son is coming up today to work on a few things. If B needs an infusion tomorrow he could take him and my daughter go get him. We need the labs to come in till we know and the doctor says his platelets need to be under 50 for transfusion. I guess what she was saying is this is UCD policy. What a crock of shit. If it’s only going to keep going down and that means an ER visit, he knows he’s at 90 so why wait??? Doesn’t make any sense.

I’m still committed to not watching the news, it’s kind of a relief really. I know how I am with stuff that upsets me so much, so I feel this is a good thing for me right now. For how long? Who knows??

Thankful Thursday

First, the biggest is B’s numbers went up enough that he didn’t need the transfusion. Today is his labs so we should know if they increased. The doctor will reduce the chemo by 25%. Also, we’ll know what to look for this time. Dr. Lee from Stanford doesn’t want to go down too much more otherwise the chemo is really for naught. So he thinks he’s still a good candidate for the Hipec so that’s what matters here.

I’m thankful to still keep walking at 6am even though it is very star-filled. I like it early but I have to admit I am feeling somewhat less motivated. Maybe that’s an age thing too or just that I need to find my why again. Right now I’ll just stick to what I’m doing which is 5 days a week sometimes 4( when I’m feeling lazy:))

I’m certainly thankful my daughter can take her Dad for labs etc. This morning I’m meeting up with the library friends so I can’t do it till later and it’s better to get them done early so the results come in.

I’m thankful to be able to swim at the pool even though it’s been hit or miss. With everything going on if I get one swim a week in that’s good. Yesterday, made it twice this week( hurray) but the pool was crazy busy. I had to wait 2o minutes for a lane and then because the pool closes at 9:25, I barely got a swim in. There seemed to be a lot of people there I hadn’t seen before. It’s odd how it is that sometimes it empties out at 8:30 and other times people were NOT giving up their lanes even though they had been swimming over an hour. I wonder if Roseville P and R could put an hour limit on lap time. ?? I doubt it but it does seem unfair when some people are swimming an hour and a half when there’s 3 people waiting. And that’s 2 to a lane. I won’t do circle swimming( that’s where there is another person who follows you and you swim in a circle. Last time I got kicked in the head. Oh well, it is what it is.

I’m grateful for our beautiful fall weather. We’re having a wood fire in the mornings to take the chill off the house. It’s very cozy.

I’m thankful we’re near the end of the whole campaigning thing. I’d just like to be over. It’s going to be very tense that Nov 5 and beyond whatever happens. I voted early and just got the notice my vote was counted!

I’m grateful for the Roseville Public Library. It’s a welcoming place and I love getting my books there.

Simple Sunday

It seems things are turning around to some degree. At least we’re not in the ER this weekend. B finally called his NP liaison from his BMT team and told her the situation with labs not getting ordered, no infusion appts etc. She immediately ordered 2 labs weekly as a STANDING ORDER and infusions when necessary. So clearly whoever is working with the other doctor is not getting the job done.

So for now, things in that regard, are positive. Also, he obviously will not be getting his next round of chemo till the doctor figures out what happened.

Tomorrow he will get labs and check his hemoglobin and platelets and if necessary then he can schedule the infusion.

Our beautiful fall weather continues and it’s so lovely. I miss seeing Tahoe this time of year but hopefully next year.

I went to the gym and did a small workout. Then I did the Goodwill dropoff, dropped our ballots at the drop box, and then went to Safeway for a few things. I picked up some turkey burgers for dinner. Last night I made a small beef stew in the IP. I didn’t have mushrooms but did use carrots, potatoes, and onions. It was quite good. There’s enough to either have for lunch or freeze. B had a chickpea stew that my son’s partner made. That was also yummy.

It’s getting close to the election and I certainly have anxiety about it. I hope tRump keeps losing it like with the Arnold Palmer story( which really is so gross). The more people can see him unhinged the better. I simply cannot understand anyone thinking he would do our country any good. He’s nuts.

I finished reading the new Vera Stanhope mystery, The Dark Wives. It was good. I just started the last LOTR book, The Return of the King. I’ll have to put some books on hold when I have time to look at what’s available.

Thankful Thursday

I’m thankful B is not in the ER after a second trip the other day. This one lasted 24 hours and was pretty awful. Something is going on with his platelets and they can’t figure it out except the chemo has affected his bone marrow.

Once again, it’s very stressful because we’ve had to coordinate pick-ups, drop-offs, and repeat. We decided if another ER visit happens which I guessing is going to, we’re just going to go to Sutter ER. It’s way closer and then we can coordinate food etc. In the UCD ER, they don’t offer coffee, water, or anything. Pretty fucked up if you ask me but I do understand because there are SO MANY PEOPLE, that the nurses etc would just be running around doing that.

Anyway, his platelets went up but by the time he was home and checked his final CBC, they had dropped some. I’m not sure where all this is going or if he can even pull out of this, but I am grateful for this time.

I’m incredibly grateful both my kids have done most of the driving him around and picking him up. Today, if he can get labs, I can drive him to that since it’s just Auburn.

I’m thankful we had a wonderful rain yesterday. Everything is fresh and smells like fall.

I’m so grateful my son went and got another load of wood from his friends. They had cut it and had it ready for him to load in the truck. I want to give them some money for all the wood they gave us, but I need to wait for the budget to settle down.

I’m thankful I had a good appt with my doctor. My kappa light chains went up 2 points and out of normal but he said, let’s not worry about that right now as it’s a minimal increase. Plus I have no mental energy to worry about it.

Monday Morning

We at least had an ok Sunday.

I didn’t even walk or go to the gym. I think I just needed a total day to recuperate from the ER visit. It’s such a strange world to go into. Even though we have these doctor/medical things, we rarely have experienced ER’s. Thank Goodness, as it was pretty awful. I mean UCD ER is probably one of the top-rated in N Ca but still.

Anyway, the nose bleeds are back which means the platelets are down again. It’s not as bad as last time but he needs to get labs this morning and then call the doctor. Then hopefully schedule him for more platelets tomorrow?? My back up plan is if they want him to go back to ER then my daughter will take him, drop him off and then I’ll go get him when he’s done. I certainly hope it doesn’t come to that but I need a plan.

My guess is he’ll go to infusion for the platelets but it does depend on how far they dropped.

I’m off to get my labs this morning too, so once again my daughter will have to drive B to the lab. Then I’m going to drive to Roseville and go to the gym, library, and then home. I need to go to the bank for my LLS insurance printout but I can do that after everything. My insurance is covered by LLS and it’s a lot of money( to us) so that needs to be submitted a certain way to get paid.

My son came up yesterday and visited. I think he’s pretty stressed about his Dad. He’s taking on all the big projects with my daughter helping. So he did all the outside trim on the bathroom window that hadn’t been done. And then he even painted the wood.

My daughter will be fixing the drainage under the bathroom ( in the crawl space) so water doesn’t pool in there this winter. There’s always so much to do this time of year and without B doing it, it really does add up.

It’s a really hard time right now and we can only hope for the best.