Tag Archives: Fucking cancer

Thankful Thursday

Posted in California, camping, cancer, husband, Lake tahoe by

First off, we had a very successful doctor appt with the UCD lung cancer specialist. Even though Barclay does not have mesothelioma in his lungs but in his peritoneum it is treated the same way. She spent a whole hour with us going over all his scans etc. She is very proactive and scheduled another Pet scan and put in for chemo to start once approved by insurance.

She said that we should wait to see what the Stanford specialist says about everything but have the other in place. I really liked her and her approach. Very approachable and down to earth and incredibly smart.

I’m grateful we only have 2 weeks till we go to Stanford although it seems like a long time to wait.

I’m grateful for our lovely cooler weather and it’s just so nice.

I’m sad we have to cancel Tahoe but there’s not any way to go up that week since we’ll be in Palo Alto Thursday and Friday. I’m sad about it but we just aren’t in a position to go up for 2 nights and then come home. Hopefully, there will be another trip.

I’m grateful I had a good day with infusion and then going to the gym and library. Infusion was busy and I have so much respect for the nurses that have to take care of 5 patients at a time. They are super heroes for sure.

Midweek…

Posted in bread, California, cancer, cooking by

We had another video visit with the doctor and it was somewhat productive. She requested that a team of oncologists, and radiologists review B’s scans, biopsy, etc. There were lots of ideas floating around but again nothing too conclusive except that it may be peritoneal primary cancer which is exceedingly rare. One pathologist was going to do a few more tests on the biopsy tissue for something. We should know something about that today. If there’s anything conclusive the Friday Biopsy would be cancelled or postponed. The one positive thing was she was going to make the referral to a medical oncologist for discussion of treatment. That’s good news as the tumors aren’t going away on their own. We haven’t heard anything as of today though.

I’m off to the pool this morning. I figured I better get a swim in since I’ll be taking Dex tomorrow and the next 3 days.

Other than that, no canning or bread-making for a bit. I’m caught up and I don’t need bread today. So when I get home the only thing I need to do is vacuum and I might have someone else do that while I’m gone. Later I’m meeting my library friends for a coffee at our cafe. I won’t stay too long as it’s busy down there and usually loud. Both of which I’m sensitive to. Still, it’s nice to get together for a coffee or probably iced tea by then.

We actually sat outside for dinner last night. The first in months. The weather is finally cool enough and quite nice actually. It’s been a tough summer.

I made a new recipe from Budget Bytes of Honey Garlic Chicken. I liked it because yo cut the chicken up in smallish pieces. Then the sauce was a honey sesame with some garlic. It was very good. Then I tried something new which was I did the same recipe but with frozen tofu chunks I had and Whozze! We all liked that better than the chicken. ( well, the chicken eaters anyway).

Our neighbor’s cat is missing and presumably eaten by a coyote. I hate coyotes for doing that. The cat was a very pretty all gray cat. We called him Little Smokey. We have lost a number of cats to coyotes here. It’s just part of this landscape. When we moved here we had no idea of this because in Foresthill we had 13 cats at one time and NEVER lost one cat to coyotes. Now all the cats we raise are indoors unless monitored outside except for Chester ( he’s the one who showed up one day and Mama Cat who is the mama to the 4 we have inside). They do go out unsupervised but there’s not much we can do about that. They are used to being out. But it’s still sad when a cat goes missing and with coyotes, there’s never any trace. Sad:(

Nothing New

Posted in cancer by

The PET scan results came back with nothing conclusive AGAIN!!! Boy, am I getting pissed off at this situation. We had a video visit with the doctor and come to find out she isn’t even the doctor who will be prescribing the chemo, she’s doing the diagnostic. I am really upset as this seems as if he just getting the run-around. She wants to do another biopsy in a different area. I brought up that the surgeon had said that the cell samples would more than likely be the same in the other masses. So WTF?? But we’ll have him do it but I think I’m going to find out where there is a patient advocate at UCD and make some sort of complaint about this whole process. I joined the Peritoneal Facebook group and a number of people said, they never got the source of the cancer( which is what she is trying to do without any luck so far.) and that their doctors started chemo based on their best judgment. So for instance one woman said although the source wasn’t defined it was near the uterus and so chemo was based on that.

I’ll have to think about what next step we should explore. Maybe a second opinion or getting back in touch with his transplant doctor for advice. We are definitely at their mercy right now and every week without chemo is …well you know.

Right now, I just need time to review the scan results and then figure out a plan. But I think I do want someone to be accountable and get him to the right oncologist.