The doctor put on urgent on the PET scan and lo and behold he got a call yesterday to come in and get the PET scan this morning. So he’s off to UCD at 7:30. This is important as the radioactive dye lights up the cancer and it should help locate the origin. So even though this a shit deal for Barclay to have to go through, maybe we’ll have some answers by early next week.
On a positive note, my labs came back with kappa in the NORMAL RANGE at 19.2 so exciting. My ratio was out of range though at 1.76 ( high normal is 1.65). The reason for this is if Lambda also goes down the ratio between the two goes up. But I’m grateful this is ok now since we have so much to deal with and as soon as he starts treatment there will be lots of trips to infusion. I need to be strong enough to get through this. My daughter and son can also drive him if needed. She’s taking him Friday for the colonoscopy so that’ll give me the morning home.
Tahoe Girl 
I am so sorry you two are going through all this. I am wishing the best. At least it seems like it is finally on the doctor’s radar and hopefully tests and treatment will go forward quickly now.
Some of the issue was that the NP was from his transplant team as well as his doctor was the head doctor for his allo. So she ( the NP) had to arrange for an internal medicine oncologist. So it wasn’t the other doctors fault or anything, it’s just he was transplant not tumor based.
I’m happy to hear they are moving quickly on further tests. Sending good wishes to you both.
Keeping you in my thoughts.