So we had the oncology appointment yesterday with the new doctor. She seemed nice but unfortunately, there is nothing new to report. Basically, the bottom line is there are cancer cells in the abdomen but the origin is not known so that’s the problem. Treatment can’t be figured out till that is done. It’s obviously very frustrating for us, especially Barclay, it’s his body.
So she said the colonoscopy could show something and at the same time will try and schedule an endoscopy to look at the upper GI. That could also prove important. The last piece of the puzzle is to do a PET scan as the hot spots show up and then after that would be another biopsy. He could be dead by the time all this is done. I mean it’s tough to just wait while these things are scheduled out. I’m sure we’ll soldier on but SHIT it’s not easy.
The drive down in the afternoon was awful. So much traffic!! Then parking at the cancer center is all valet because they are building a parking garage where the old parking was. So you definitely need to add time for that.
Tahoe Girl 
I’m so sorry you are going through this. When they first found my abdominal cancer, that started all the tests to figure out where it came from. It turned out there were no other sources, and mine was primary to the abdomen. In my case, as is common among women, it was a variation of ovarian cancer. With men, I think it can be mesothelioma and maybe some others? Anyway, it took a long time, but it was slow-growing, and in the end, I came out OK. As know first-hand, amazing things happen.
That’s interesting it was primarily in the abdomen. It is a tough call for Barclay after having gone through so much with MDS.
I’m so sorry you are both going through this. It must be so frustrating. You need some answers. The waiting is so hard, and now more waiting. I don’t quite understanding why they don’t know where the cancer is?Sending positive thoughts your way.
I guess there’s always a source and that’s what they need to find. Although I dont get it either.
So sorry you are in this diagnosis limbo phase. It must be very difficult and stressful. Hoping the next tests happen soon.
It is stressful and mostly of course the unknown. Will treatment help? We just dont know.